Skip to main content
EnglishEnglish
EnglishEnglishDutchDutchFrenchFrenchGermanGermanItalianItalianJapaneseJapanesePortuguesePortugueseRomanianRomanianRussianRussianSerbianSerbianSpanishSpanish

User Menu (Anonymous)

  • Login
  • Register
  • Search
Home

Main navigation

  • Patients and Caregivers
  • Medical Professionals
  • Log in
  • Register
  • Search

Main navigation dropdown patients and caregivers

  • Learn about LVADs
    • Congestive Heart Failure
    • Intro to LVADs
    • LVAD Technology
  • LVAD Lifestyle
    • Living with an LVAD
    • Emergency Field Guides
    • Video Library
    • Available Resources
    • Fellow "VADER" Recommended Accessories
  • Caregivers
    • Caregiver Support Forum
    • ENABLE Caregiver Guides
    • Expert Sessions
    • Other Support Resources
  • Discuss & Connect
    • Events Calendar
    • Community Forums
    • Community Blogs
    • Online Support Group
    • Stories
  • Locator Maps
    • Hospital Map
    • Community Network Map
    • Download the MyLVAD App

Main navigation mobile

  • Patients and Caregivers
    • Learn about LVADs
      • Congestive Heart Failure
      • Intro to LVADs
      • LVAD Technology
    • LVAD Lifestyle
      • Living with an LVAD
      • Emergency Field Guides
      • Video Library
      • Available Resources
      • Fellow "VADER" Recommended Accessories
    • Caregivers
      • Caregiver Support Forum
      • ENABLE Caregiver Guides
      • Expert Sessions
      • Other Support Resources
    • Discuss & Connect
      • Events Calendar
      • Community Forums
      • Community Blogs
      • Online Support Group
      • Stories
    • Locator Maps
      • Hospital Map
      • Community Network Map
      • Download the MyLVAD App
  • Medical Professionals
    • Essential Resources
      • Available Resources
      • Medtronic Resources
      • Abbott Resources
      • EMS Field Guides
      • Policies and Procedures Library
      • Hospital Support Center Listing Request
    • Discuss & Connect
      • Conferences and Continuing Education
      • Events
      • ICCAC Website
      • MCS Collaboration Group
    • LVAD Coordinators
      • Hospital Locator
      • VAD Coordinator Registration
      • Take our Survey
  • Log in
  • Register
  • Search

Patients and Caregivers Forums

You are here

  • Patients and Caregivers
  • Discuss & Connect
  • Patients and Caregivers Forums

Log in or register to post new content in the forum.

Profile picture for user Arthur_Barnstein
Arthur B.
Recipient Support

Fluid Around the Pump

Last activity 4 years 7 months
Hi, I have had my Lvad for seven years. Recently I have developed fluid around the pump they removed one and 1/3 liters by aspiration however after a month it came back. I have had a surgery done at Tufts New England Medical Center in Boston but the procedure was not successful and two months later...
  • Log in or register to post comments
Profile picture for user gldoble57
Gregory D.
Inspiration and Encouragement

My oh My 5 years and still kick'n it :)

Last activity 4 years 7 months
Hello to all of my LVAD brothers and sisters out there. Come the middle of this month I will have had my LVAD HM II for 5 years. Not a bad stinit considering 5 years ago I should have died. But my primary LVAD and Cardiac Hospital pulled me through with 3 months in the hospital, massive infections...
  • Log in or register to post comments
Profile picture for user TackroomFred
Fred T.
Living with an LVAD

LVad questions

Last activity 4 years 7 months
Hi- just figured out how to find & use this site. 2 questions 1-Anyone know what > 12 Means in both Peak & trough??? 2- open you up chest/ sternum Is there a less invasive operation? Thanks
  • Log in or register to post comments
Profile picture for user JesseVoss
JesseVoss V.
Living with an LVAD

Impella heart pump

Last activity 4 years 7 months
HI, Has anyone on here, or someone you know, ever had an Impella device placed? It's claim is that it's the world's smallest heart pump. It takes over 50% or more of your heart function. I had one placed on 03/07/17. They left it in maybe 2-3 days. I was pretty out of it so I'm not sure how long it...
  • Log in or register to post comments
Profile picture for user Robert_Coppola
Robert C.
Clothing Options

Freedom Undervest from Medi-Materials

Last activity 4 years 7 months
Medi-Materials has an undershirt called the Freedom Undervest. https://medi-materials.com/product/freedom-undervest/
  • Log in or register to post comments
Profile picture for user mimiatorres
Myriam T.
Living with an LVAD

Myriam's Story

Last activity 4 years 7 months
I will soon complete 6 years since I received my Heartmate 2. When I was admitted at Mayo Clinic in PHX AZ I had a severe congestive heart failure. My ejection fraction was less than 10%. I had been sent by two other hospitals to Hospice care and given 90 days to live in February of 2012. I had lost...
  • Log in or register to post comments
Profile picture for user Maggie55
Margaret B.
Caregiver Support

Husband just had lvad fitted

Last activity 4 years 7 months
Hi everyone who replied to my post. I would just like to say a big Thank you it has helped to know there are others out there that has similar problems. I would like to wish everyone a happy Christmas and all best wishes for the new year.
  • Log in or register to post comments
Profile picture for user JDStratton
John S.
Clothing Options

The Freedom Undervest proves that "different" doesn't have to mean "difficult."

Last activity 4 years 7 months
Life with an LVAD can be challenging, and loved ones in your life may not realize just how different your day-to-day activities look. From cleaning, inspecting, and changing the bandages on your exit wound to plugging in your LVAD equipment at night, life just looks a bit different after receiving...
  • Log in or register to post comments
Profile picture for user AllHeart
Benny R.
New to LVADs

Have my VAD for 7 weeks

Last activity 4 years 7 months
Have my VAD for 7 weeks now, and all is well. Still very tired after a flight of steps. Have the model HM 3. It's weird having to carry a bag 24/7. Anyway, just saying hello. Benny.
Profile picture for user AllHeart
  • Log in or register to post comments
Profile picture for user lazorbeam
Jose N.
Tips and Tricks

Skin irritation from adhesive

Last activity 3 years 3 months
I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution. I...
  • Log in or register to post comments
Profile picture for user acura
Pat A.
Recipient Support

If you need some supplies for a heartmate 2

Last activity 4 years 7 months
My husband had a heart transplant . He had a LVAD : Heartmate 2.We are located in Massachusetts . In Middlesex county . If you need driveline kits we have then to give if you are in need. Please Email me and we will make a connection acura1234567@aol.com. God bless.
  • Log in or register to post comments
Profile picture for user JDStratton
John S.
Living with an LVAD

Traveling with your LVAD

Last activity 4 years 8 months
We developed the Freedom Undervest so that patients could continue doing the things they love. This week on the blog, we discuss traveling with an LVAD. Did you know 38% of people we polled say they haven't traveled since their LVAD procedure? Reclaim your wanderlust and hit the road, with the...
  • Log in or register to post comments
Profile picture for user Sloan51
Maurice S.
Recipient Support

Need New Program

Last activity 2 years 1 month
Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and...
  • Log in or register to post comments
Profile picture for user gomez.angie338_2
Angie G.
Congestive Heart Failure

Anything is Possible!

Last activity 4 years 8 months
My Dad received a heart transplant in 2015. We believed that he would make it through. All through FAITH in God knowing that there would be a reason. I am grateful to God everyday for also renewing him heart, mind, and soul to know who God is in his life!! Stay strong and believe!! I will be...
  • Log in or register to post comments
Profile picture for user JDStratton
John S.
Living with an LVAD

Sleep in Freedom!

Last activity 4 years 8 months
The Freedom Undervest keeps your LVAD equipment safe all day. We recommend sleeping in your Freedom Undervest, so that your LVAD equipment stays secure at night, and you remain comfortable. (It helps to have more than one vest, so that you can rotate them throughout the week.) Visit our Blog to get...
  • Log in or register to post comments
Profile picture for user JDStratton
John S.
Recipient Support

Reduce Driveline Infections

Last activity 4 years 8 months
I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site. Read more: https://medi-materials.com/2018/03/28/no...
  • Log in or register to post comments
Profile picture for user walkabout787
robert W.
Recipient Support

pump noise

Last activity 4 years 8 months
Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?
Profile picture for user AllHeart
  • Log in or register to post comments
Profile picture for user JDStratton
John S.
Clothing Options

Freedom Undervest

Last activity 4 years 9 months
I'm happy to announce the launch of the Freedom Undervest, a garment designed to free you from your VAD bag. Medi-Materials has worked with LVAD patients and doctors to develop a comfortable vest that secures your external equipment in a completely hands-free manner. Learn more on our blog: https:/...
  • Log in or register to post comments
Profile picture for user walkabout787
robert W.
New to LVADs

pump noise

Last activity 4 years 10 months
Hello, I am new to this forum . I had my lvad surgery on September 19 . Everything seems to be going good except for the fact that i can hear the high pitched hum of the pump .H as anyone else had this problem?
  • Log in or register to post comments
Profile picture for user A.D
Amine D.
New to LVADs

LVAD after stroke

Last activity 4 years 10 months
Hi My father is 60 years old who suffered a ischemic stroke on 11/1/2018. Right now he is half paralyzed with aphasia. He has chronic heart failure. His heart is working 15-20%. He had a bypass in 2006 and a pacemaker implanted in 2012. I talked to a heart failure specialist who said our hope is...
  • Log in or register to post comments

Pagination

  • First page « First
  • Previous page ‹‹
  • …
  • Page 15
  • Page 16
  • Page 17
  • Page 18
  • Page 19
  • Page 20
  • Current page 21
  • Page 22
  • Page 23
  • Next page ››
  • Last page Last »

Topics

Pagination

  • Previous page ‹ Previous
  • Page 20
  • Next page Next ›

Most Commented

Tagader m vs. Glad press and seal
12 replies
Pains with vad
12 replies
Travel advice welcome
12 replies
Dating w/the LVAD
12 replies
Donated Wetsuit Helps Heart Patient Return to…
12 replies

Pagination

  • Previous page ‹ Previous
  • Page 21
  • Next page Next ›

Most Viewed

Have you named your LVAD unit yet?
9,148 views
Exercises
9,135 views
Sleeping
9,090 views
LVAD 5/25/17 for my Dad
8,983 views
Fluid retention
8,982 views

Pagination

  • Previous page ‹ Previous
  • Page 21
  • Next page Next ›

Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

Do you have the MyLVAD Hospital Locator App?

  • App Store
  • Google Play

Footer menu

  • Refer a friend
  • About MyLVAD
  • Contact Us
  • Community Forums

Bottom menu

  • MyLVAD Foundation, LTD.
  • © MyLVAD
  • Legal Conditions

Social Links

  • Twitter
  • Facebook