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Profile picture for user kimelliott
Kim E.
Exercise and Physical Activity

Cardiac Rehab

Last activity 9 months 1 week
Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...
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Sophie F.
Clothing Options

More Info on How You Wear Your VAD

Last activity 9 months 2 weeks
Hello Everyone, Per my capstone project on making better solution catered towards women who have LVADs, I would love to know more specifically how you hold your LVAD in different articles of clothing! Girdles, vests, shirts, etc. I would love to know how you uniquely wear your LVAD for different...
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Profile picture for user Meg0911
Megan J.
Caregiver Support

Becoming a caregiver of a parent while having a husband and child

Last activity 9 months 3 weeks
Hello. I honestly just wanted some advice and knowledge on what to expect if my Mom ends up getting one. They are discussing it during this hospital admission. I have been looking after both of my parents for the past three months as my Mom has been in and out of the hospital and my Dad has...
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Profile picture for user TRP2020
Tobi L.
Living with an LVAD

Blood pressure monitoring survey

Last activity 9 months 3 weeks
Hello We are students at University of Toronto learning about LVAD and blood pressure. We are working with cardiologists and engineers to try and see how we can improve the blood pressure measuring experience for patients and caregivers. If you have a few minutes to answer a quick 10-question survey...
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Profile picture for user joemanuola
Joe M.
Clothing Options

HeartMate III Mens Clothing

Last activity 1 month 3 weeks
I received a HeartMate III LVAD on 1/25/19. I have been home from the hospital for 5 days and I am using a Thoratec vest that was given to me at the hospital.I am ready to order mens clothing to accommodate my LVAD and would appreciate some advice. The batteries are now hanging on my side and the...
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Profile picture for user kelley_1206
Kelley A.
Living with an LVAD

Remote Monitoring of your LVAD

Last activity 9 months 4 weeks
Hello everyone, I am familiar with VADs because I am a cardiovascular perfusionist - the person who operates the heart lung machine. At the hospital I work at were are very involved in VAD implant surgery, but also are responsible for taking care of VAD patients when they come to the operating room...
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Profile picture for user cherilee
Sherry B.
Driveline Management

Comfortable Binder

Last activity 10 months
My mother had an lvad implant in June 2019. The waist binders she has to keep her driveline secure are rough and scratchy. Does anyone have suggestions for alternate binders. She’s fairly petite. I appreciate any suggestions!
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Profile picture for user Mary
Mary E.
Tips and Tricks

COVID 19 help

Last activity 10 months
Our local LVAD hospital is, like all others, running short of gloves and other supplies. If you are a Heartmate 3 user I know you have extra gloves and hand sanitizers in your kits. If you do have extras why don't you save them and take them with you on your next visit or get them to the ER. It's...
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Profile picture for user dna2rna
Laura N.
New to LVADs

My introduction and major question

Last activity 10 months
Hi, I'm a 35 y/o caregiver to my dad with heart failure. The hospital LVAD educator suggested I speak with the people on here for more information from people who have actually been there. Up until recently, my father has an EF around 10%, does not use oxygen, can walk short distances, and can...
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Profile picture for user jennishuston
Jennis H.
Equipment

Total LVAD FOR SALE

Last activity 10 months 1 week
LVAD Battery dock, batteries(8), power module deck w/25 ft. Cord for sleeping, LVAD bag, battery tops, kits, gauze, betadine packs, lots of extra gear, and record of maintenance. Well taken care of and has been plugged in and maintained since removal. Was all brand new equipment when removed. Lots...
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Rholena M.
Patient and Caregiver Forums

Leaky valve

Last activity 10 months 1 week
Leaky valve 2.5 years after surgery
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Mercedes T.
Intimacy and Relationships

Relationships

Last activity 10 months 1 week
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Profile picture for user VADtech
LVAD M.
Clothing Options

Opportunity for new and improved LVAD wearables - please give feedback

Last activity 10 months 1 week
Hello, I am in the process of designing a new LVAD shirt and would like feedback from patients and caregivers regarding LVAD wearable clothing items. Please take a few minutes to respond to the survey below. Thank you! https://www.surveymonkey.com/r/G656YDR
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Profile picture for user student4273
Matthew H.
Patient and Caregiver Forums

Survey for LVAD infection improvement

Last activity 10 months 1 week
Hey y'all, I am a senior in college in a group working on our senior project. We are developing an improvement in mobility and reducing infection for the driveline exit site. In order to survey customer needs, we made a ~7 minute questionare if y'all have time it would be much appreciated. This...
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Profile picture for user Simone
Simone Helena D.
Questions about LVAD surgery

Research

Last activity 10 months 1 week
If you had a chance to perform research about LVADs, which question would you like to be answered?
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Profile picture for user padamssm
Patricia S.
Clothing Options

New LVAD Freedom Undervest for sale at half-price

Last activity 10 months 1 week
My husband bought a Freedom Undervest by Medi-Materials, XL size, white. He tried it on but has not worn it. Cost new is $49.95. He decided to stay with his around-the-waist belt. Will sell and ship vest for $30. I'm happy to answer questions. Patricia
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Profile picture for user JoceB
Jocelyn B.
Questions about LVAD surgery

Am I getting the LVAD?

Last activity 10 months 1 week
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Profile picture for user Gary-L
Ruth or Gary L.
Clothing Options

LVAD Clothing

Last activity 10 months 2 weeks
My husband wears a canceal weapon under armour shirt to hold his batteries and I sew on a pocket in the front for his controller. Go to Tactile Gear.com. I t does work great.
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Profile picture for user JDStratton
John S.
Clothing Options

The Proper way to Load the Freedom Undervest

Last activity 10 months 2 weeks
If loaded properly, the LVAD Undervest will help with most of the problems associated with carrying your external equipment in a bag. Namely, skin irritation from driveline anchors, trauma and pain at the exit wound site, driveline fractures and infections, shoulder and back pain and, the worry of...
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Profile picture for user dgibbons
Devon G.
Clothing Options

Stabilizing belt for jumping recommendations

Last activity 10 months 3 weeks
I am 26, in fair condition, well enough to exercise and want to add jumping to my exercise program but the controller and two batteries aren't held stable well enough with anything I have. Does anyone have suggestions? Thanks
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Most Commented

I just got an LVAD
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Wearing my LVAD
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How do you wear your external equipment?
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Study Enrollment has Closed - Would you like to…
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Shower bags
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Most Viewed

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MyLVAD Online Caregiver Support Group
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Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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