Patients and Caregivers Forums

Depression is starting to wear me down lately. Im tired of people looking at me like i have five heads; and they have no idea what the F*ck im saying. I feel like im screaming in which nobody can hear and im here just existing and nobody can see me. My mom refusers to broaden her horizons and meet...

My husband had massive heart attack end of Jan 2022 and had no prior symptoms. Completely collapsed with head injury and died for 25 mins. After multiple surgeries to open up arteries, he received LVAD on Feb 14. Stayed in ICU, then a drop down ICU, then private room then released to a Rehab...

Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...

My husband recently died. I have lots of equipment and supplies that I’d like to donate to someone who might need them. I believe his system was a Heartmate II. I have lots of pix if you wish to see them. I am located in Rockport Texas, but will be traveling from there to wisconsin later this summer...

Hi I have sum dressings that I can not use and I am willing to ive them to somebody that needs them . They are called Centurion willing to ship from Pa if you pay the shipping cost Thank youRobert

Hi Everyone, My name is Arthur Canga, I'm from Brazil. My dad got the heartmate 3 this past July and i would like to get a few tips or some suggestions to protect his driveline during the shower. What kind of bandage is more secure to avoid his driveline of getting wet? He is starting to get some...

I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...

How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?

Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.

If anyone wants to donate LVAD shirts in XL or XXL , please let me know. They are so expensive. Thank you so much!

Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...

Would like to donate some of my husbands equipment. He went to rest with the Lord.

Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...

Hello Everyone! I recently became the proud owner of a new heart! As a result of my new gift, I have several equipment items up for grabs, if anyone is interested. I have the following items, all for a Heartmate 3: Extra batteries / Extra controller / Two battery clips / 8x12 tegaderm bandages / 1...

My new heartmate 3 design is in print and already being shipped out. This is the new Heartmate 3 LVAD Strong design. The design is based upon my own CT scan from 2013.#1 LVAD strong merchandise sold all over the world. Please specify that you want the LVAD Inside logo on the back, or NURSE...

Hi all, My father underwent LVAD implant surgery but unfortunately he passed away immediately after. Since he never left the hospital, all the external LVAD equipment and accessories are unused and left with us. I was hoping to list them here in case someone would be interested in buying as it would...

Hi - Unfortunately, my father passed away in November and was an LVAD patient. I have a couple of LVAD shirts and an LVAD vest that I would like to donate. Is there a place that I could send these to? The hospital did not take donations. Thank you -

Has anyone ever used a gas generator to power their charging doc or main power source? Some doctors don’t recommend using a generator for any of the charging/power needs.

Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx

I've had a lvad since 1/16/2019. My issue is medicare keeps denying my lavd dressing kit costs. As of January 2020 (finally got out of hospital) I require a dressing change everyday because of drainage at the driveline site due to pseudomonas aeruginosa infection. I have been in and out of hospital...