Patients and Caregivers Forums

I have recently 'celebrated' 10 years of living with a Ventrassist LVAD here in the UK The machine's performance has been exemplary' I have heart failure again now so life is not at all easy Only difficulties haves been with obtaining batteries, medication and the weight of the machine itself...

Hello everyone. I am just now beginning to discuss the option on an LVAD with my cardiologist. I have had Dilated Cardiomyopathy for 15 years. Life was a breeze, cruising along at 35% EF, up from 20% at dx. However, the last year has been tough. My EF is now back to 20% and I've been hospitalized...

I have recently 'celebrated' 10 years of living with an 'antiquated' Ventrassist LVAD in the UK. Life has not been easy with the heavy batteries and so on, but the 'behaviour' of the pump itself has been exemplary! We are getting to the stage where getting batteries for it can be quite difficult....

Bivad anyone have them? Them?

Hi. I am new here. I received my Lvad on December 29, 2017 after 20 years with congestive heart failure. In early 2016 my heart started getting extremely worse. in 7 months I was hospitalised 8 times. After 5 days the drs said i was ready to go home. I have had no problems so far. My question is...

This is my first post. My husband has had his LVAD for five weeks now, and I want to share this web site with you all for making your life easier with a LVAD. My husband is so grateful to discover how this shirt gave him freedom to do daily life activities. Take a peek and see if it is something you...

The most favorite Lvad t-shirt now available on black friday https://www.facebook.com/LVADshirt/posts/1973147372701194

Hi, my name is phil lay and I've been the care giver for a grouchy old man since he received his first lvad (he's on his third one now). I've been fired several times, mind you I've never been hired or paid. I do it outta love for the old fart. So here's my question: he's in Sutter again, and this...

My husband was diagnosed with CHF in 2014. In 2017 he had a stroke and his heart enlarged and as time went on, his heart health declined a lot. Last week, while I was pumping gas, my husband, son (5 yrs) and daughter (2yrs) were in the car and my husbands ICD fired. HIs ICD fired a total of 54 in 40...

hi, I’ve had my lvad for 8months, had the surgery in Canada, then I’ve recently moved back to the u.k. I’ve not really met anyone with the lvad, it would be nice to swap stories, tips and chat about living with the device would be nice.

Has anyone used a NMES unit for foot drop on a person with an HVAD in place?

Hi everybody, I'm hope one of you all have or had this problem. I am having trouble getting my doppler to get to 80 to 85 and I'm having trouble to get the right blood pressure meds. I will get some that doesn't work,or I get one that I' m have an allergy to..... that is the problem I am having. My...

Hi Everyone, I am a RN Care Advisor that does case management for some patients with LVADs and I am trying to learn if anyone started having an increase in fatigue and SOB around year 4-5 with the LVAD and if there were any discussions/treatments/medications etc that improved it? Thanks again and I...

Hi. I had my L-VAD implanted almost 4 months ago. They can't get my blood pressure stabilized. I'm trying to find a vascular Doppler here in Canada so I can check at home, no luck. Any suggestions or help would be appreciated, many thanks!

My husband got his lvad December 22nd, 2018 and he is getting discouraged as he feels he isn't making much progress. Feels like he takes one step forward and two back. Any ideas on how to encourage him.

Two years ago my husband who suffers from congestive heart failure was tested to be put on a heart transplant list. He was deemed to healthy. Now we are facing the same testing. I can live with the thought of him receiving a heart transplant. He feels fine right now. No shortness of breath, he golfs...

Hello, My name is Meghan and my boyfriend, Chris, recently received a HeartMate 3 on December 27th. I am 25 years old and my boyfriend is only 30. He was diagnosed with dilated cardiomyopathy on Halloween, so this process came very quickly for us. Chris has been medically sedated since December 14th...

I am preparing for my LVAD surgery next month. Other than clothing, what types of supplies will I likely need to purchase for myself (not covered by insurance)? Are there additional products that people have made your life with a VAD easier that were not mentioned by your medical team?

Has anybody gone into a "Bridge to transplant " surgery, then after 3 years been told you've always been "Destination "?

Join us TONIGHT at 7pm EST for an interactive video support group designed for LVAD recipients and caregivers. Connect with others who are affected by LVADs, make some new friends, and discuss issues that are unique to the LVAD world. There are multiple ways that you can join the meeting. Choose one...