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Profile picture for user dohmantesla96
Tesla D.
Intimacy and Relationships

Illinois Lvaders

Last activity 11 months 1 week
Depression is starting to wear me down lately. Im tired of people looking at me like i have five heads; and they have no idea what the F*ck im saying. I feel like im screaming in which nobody can hear and im here just existing and nobody can see me. My mom refusers to broaden her horizons and meet...
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Profile picture for user Kim Biondo
Kim B.
Diet

Diet and INR

Last activity 11 months 3 weeks
My husband had massive heart attack end of Jan 2022 and had no prior symptoms. Completely collapsed with head injury and died for 25 mins. After multiple surgeries to open up arteries, he received LVAD on Feb 14. Stayed in ICU, then a drop down ICU, then private room then released to a Rehab...
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Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 11 months 3 weeks
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
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Profile picture for user hunter1900
Deanna E.
Equipment

Equipment donation. Rockport Texas Heartmate II

Last activity 11 months 3 weeks
My husband recently died. I have lots of equipment and supplies that I’d like to donate to someone who might need them. I believe his system was a Heartmate II. I have lots of pix if you wish to see them. I am located in Rockport Texas, but will be traveling from there to wisconsin later this summer...
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Profile picture for user mrdrfter101
Robert R.
Equipment

Dressings

Last activity 1 year
Hi I have sum dressings that I can not use and I am willing to ive them to somebody that needs them . They are called Centurion willing to ship from Pa if you pay the shipping cost Thank youRobert
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Profile picture for user arthurcanga
Arthur c.
Driveline Management

Shower Protection

Last activity 1 year
Hi Everyone, My name is Arthur Canga, I'm from Brazil. My dad got the heartmate 3 this past July and i would like to get a few tips or some suggestions to protect his driveline during the shower. What kind of bandage is more secure to avoid his driveline of getting wet? He is starting to get some...
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Profile picture for user Ivan McCarthy
Ivan M.
Caregiver Support

Meartmate3 better dressing configuration

Last activity 1 year
I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...
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Profile picture for user hdeit48@gmail.com
Harriett D.
Caregiver Support

Sterile dressing changes

Last activity 1 year
How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?
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Profile picture for user Dyala
Dyala A.
Exercise and Physical Activity

Help me please

Last activity 1 year 1 month
Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.
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Profile picture for user pmunoz1950
Victor M.
Clothing Options

LVAD shirts

Last activity 1 year 1 month
If anyone wants to donate LVAD shirts in XL or XXL , please let me know. They are so expensive. Thank you so much!
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Profile picture for user Bspaulding
Barb S.
Caregiver Support

North Dakota

Last activity 1 year 1 month
Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...
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Profile picture for user Susang
Barry and Susan (caregiver) S.
Equipment

Charger

Last activity 1 year 1 month
Would like to donate some of my husbands equipment. He went to rest with the Lord.
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Profile picture for user Rioke
'Rioke" Oghenerioke P.
Equipment

LVAD Equipment to give away.....

Last activity 1 year 1 month
Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...
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Profile picture for user dsachey
Darla A.
Equipment

Extra Equipment to Donate

Last activity 1 year 2 months
Hello Everyone! I recently became the proud owner of a new heart! As a result of my new gift, I have several equipment items up for grabs, if anyone is interested. I have the following items, all for a Heartmate 3: Extra batteries / Extra controller / Two battery clips / 8x12 tegaderm bandages / 1...
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Profile picture for user Mark_Sandy
Mark S.
Clothing Options

New LVAD Strong Merch

Last activity 1 year 2 months
My new heartmate 3 design is in print and already being shipped out. This is the new Heartmate 3 LVAD Strong design. The design is based upon my own CT scan from 2013.#1 LVAD strong merchandise sold all over the world. Please specify that you want the LVAD Inside logo on the back, or NURSE...
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Profile picture for user ronilp
Ronil P.
Equipment

LVAD accessories for sale - Heart Mate 3

Last activity 1 year 2 months
Hi all, My father underwent LVAD implant surgery but unfortunately he passed away immediately after. Since he never left the hospital, all the external LVAD equipment and accessories are unused and left with us. I was hoping to list them here in case someone would be interested in buying as it would...
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Profile picture for user lkantos
Laura A.
Clothing Options

clothing to donate

Last activity 1 year 2 months
Hi - Unfortunately, my father passed away in November and was an LVAD patient. I have a couple of LVAD shirts and an LVAD vest that I would like to donate. Is there a place that I could send these to? The hospital did not take donations. Thank you -
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Profile picture for user klduhon93
Kelsi D.
Equipment

Generator Use

Last activity 1 year 3 months
Has anyone ever used a gas generator to power their charging doc or main power source? Some doctors don’t recommend using a generator for any of the charging/power needs.
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Profile picture for user Debby61756
Debora L.
Equipment

Heartmate 3

Last activity 1 year 3 months
Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx
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Profile picture for user srkasten
Steve K.
Equipment

lvad dressing kits

Last activity 1 year 3 months
I've had a lvad since 1/16/2019. My issue is medicare keeps denying my lavd dressing kit costs. As of January 2020 (finally got out of hospital) I require a dressing change everyday because of drainage at the driveline site due to pseudomonas aeruginosa infection. I have been in and out of hospital...
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