Patients and Caregivers Forums

Greetings from Macon GA I have major concerns for non-Hospitalized , Mobile ,active VAD patients leaving Florida to seek shelter . Macon as far as I know is the first VAD center north of Florida . I am attempting to mobilize southeast vad coordinators for the weekend in case cousin Tom from Tampa...

Henry, my husband, had a massive heart attack, Nov. 2016. We practically lost him and we were devasted at the news that he may not "make" it we were told. No "promises"....I knew it was dire. I knew at that point we had to just pray for the doctors and staff that were treating him. Now....almost six...

I found a long narrow back pack that is perfect for carrying my extra batteries and extra controller. It's a perfect size and is very comfortable. Now when I walk around with the extra gear, I hardly notice I am carrying it, and it helps me to stay more balanced and stand up straighter. I found this...

Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?

Hallo, Wir (Das Contilia Herz und Gefäßzentrum und der Selbsthilfeverein Pulslos leben) wollten gerne zu einer Fahrradtour durch das Ruhrgebiet im Rahmen der grünen Hauptstadt Europas einladen. In den vergangenen Jahren haben wir diese Fahrradtour schon mit Patienten aus Essen und Umgebung...

My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of...