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Profile picture for user Kristi
Kristi W.
Equipment

Equipment donation

Last activity 3 months 2 weeks
My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com
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Profile picture for user marcan74
Mary C.
Clothing Options

Heart ware lvad shirts

Last activity 3 months 2 weeks
My husband recently passed away. I have 4 lvad vest shirts (3 black, 2white, size medium). They work really well and are comfortable with a Heartware lvad. I would like to donate them since I know they are costly to buy.
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Profile picture for user Giants17
Lee S.
Driveline Management

Driveline Port area rash

Last activity 3 months 3 weeks
Been dealing with a rash around the port area. Port is not infected. My skin can't take anymore adhesive. Wondering if anyone has experienced this situation. Any help or suggestion would help!!!
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Profile picture for user rlouis1439
ron l.
Medications

CoQ10

Last activity 3 months 3 weeks
Does anyone have a history of taking the supplement CoQ10? I was reading an interesting study from the American Heart Association: Coenzyme Q10 and Heart Failure A State-of-the-Art Review
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Profile picture for user Kim Biondo
Kim B.
Financing and Insurance

Coping with Reality

Last activity 4 months
How do others do it? My husband had a heart attack end of January 2022 and received an LVAD on Valentines Day. He is home and going through cardiac rehab but because there was a head injury, injury to femoral artery and now he has neuropathy in his feet bad, he can't work again. This was supposed to...
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Profile picture for user lvaduser.001
Lori C.
Caregiver Support

Subacute rehab

Last activity 4 months 1 week
We are looking for a subacute rehab in nj area. I googled and was not able to find any
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Profile picture for user Shelly
Lynn M.
Patient and Caregiver Forums

Infection

Last activity 4 months 1 week
Hi Everyone, my roommate has a heart mate 3 and has had an infection in the past. The last few days he has had a discharge of a green color and he seems to think that is normal. All he does is sleep, nothing new tho but he isn’t feeling well either. Has diarrhea also. What do you all think? I think...
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Profile picture for user Cat Shaw
Cat S.
New to LVADs

Where are the recent posts, I am scared!!

Last activity 1 month 1 week
Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...
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Profile picture for user ljwaldon
Laura W.
Equipment

Lvad Equipment and clothing

Last activity 4 months 1 week
My dad recently passed, we would like to donate his equipment and clothing; Heart Mate 2. We have spare batteries (4 boxes w/4 batteries in each box), battery charger, the remote for the batteries, shirts (large) and vests (large). Equipment and clothing are very clean, my dad was very particular...
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Profile picture for user JeffismyAngel
Felicia D D.
Caregiver Support

Equipment and Supplies

Last activity 4 months 3 weeks
2 days after his 5th year anniversary with the LVAD my husband passed away on month shy of his 61st birthday (which is next week). I have the wall plug, the battery charger with 8 batteries and the harness. I am in NC so please let me know if anyone needs any of these items. Contact me if these...
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David T.
Stories

Mr.

Last activity 4 months 3 weeks
I just found your website. I have a story to tell. I made a diary from when I decided to have surgery till today. It was daily while in the hospital to a week or so out. Then whenever I have something to add. I hate to brag but the LAVD team at Banner University Hospital in Phoenix calls me their...
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Profile picture for user jodir
Jodi R.
Driveline Management

Pain at drive line site

Last activity 5 months
My husband has had his Heartmate 3 for almost a year now. He has days where he gets a stinging pain at the drive line site. We have not been able to get an explanation for this. Has anyone else experienced this, know what causes this, or how to eliminate it?
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Profile picture for user Giants17
Lee S.
Living with an LVAD

Christmas

Last activity 5 months 1 week
Merry Christmas to all those LVAD'ers out there. I hope that Santa is good to all of you!!
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Profile picture for user tballoch
Thomas B.
Exercise and Physical Activity

Golfing

Last activity 5 months 2 weeks
Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?
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Profile picture for user walkabout787
robert W.
Living with an LVAD

Noisy pump

Last activity 5 months 3 weeks
pump noise Hello I am a new lvad recipient, I had my surgery on September 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?
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Profile picture for user Kim Biondo
Kim B.
Clothing Options

HOMEMADE LVAD SHIRTS

Last activity 5 months 3 weeks
I asked my husband who has a Heartmate 3 to dig out ten old t shirts he will still wear. THis is all he used to wear so he is comfortable in them. Then I got donations of old t shirts from our children and cut them up to make pockets to go on his old t shirts. I sew two pockets under the arms and...
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Profile picture for user 67mike
Michael H.
Congestive Heart Failure

Getting lvad

Last activity 5 months 4 weeks
I am going to get lvad in July at Methodist hospital in Houston. Can any one tell me what all changes I'll be dealing with. And any info shared would be great
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Profile picture for user jalrnt
Amy T.
Caregiver Support

LVAD and dialysis clinics

Last activity 5 months 4 weeks
My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...
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Profile picture for user Tabitha.B
Tabitha B.
Inspiration and Encouragement

LVAD Man book

Last activity 5 months 4 weeks
https://www.amazon.com/LVAD-Man-Tabitha-Belhomme/dp/B0BMSNRHM5/ref=sr_1_1?crid=DZ6FAHAKT209&keywords=lvad+man+book&qid=1669051242&s=books&sprefix=lvad+man+book%2Cstripbooks%2C132&sr=1-1 Hello everyone, My name is Tabitha, and I'm a nurse who formerly worked on a cardiac step-down unit. I am reaching...
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Profile picture for user rlouis1439
ron l.
Inspiration and Encouragement

A must read, imo

Last activity 6 months
I’ve always found it difficult to navigate the different forums so I just copied and pasted the post: I went through the same… Mon, 09/05/2022 - 1:35PM I went through the same thing after my VAD implant, wondering what life would be like, whether it was worth it to undergo the surgery, pain and...
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Facebook Groups

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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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