Patients and Caregivers Forums

My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com

My husband recently passed away. I have 4 lvad vest shirts (3 black, 2white, size medium). They work really well and are comfortable with a Heartware lvad. I would like to donate them since I know they are costly to buy.

Been dealing with a rash around the port area. Port is not infected. My skin can't take anymore adhesive. Wondering if anyone has experienced this situation. Any help or suggestion would help!!!

Does anyone have a history of taking the supplement CoQ10? I was reading an interesting study from the American Heart Association: Coenzyme Q10 and Heart Failure A State-of-the-Art Review

How do others do it? My husband had a heart attack end of January 2022 and received an LVAD on Valentines Day. He is home and going through cardiac rehab but because there was a head injury, injury to femoral artery and now he has neuropathy in his feet bad, he can't work again. This was supposed to...

We are looking for a subacute rehab in nj area. I googled and was not able to find any

Hi Everyone, my roommate has a heart mate 3 and has had an infection in the past. The last few days he has had a discharge of a green color and he seems to think that is normal. All he does is sleep, nothing new tho but he isn’t feeling well either. Has diarrhea also. What do you all think? I think...

Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...

My dad recently passed, we would like to donate his equipment and clothing; Heart Mate 2. We have spare batteries (4 boxes w/4 batteries in each box), battery charger, the remote for the batteries, shirts (large) and vests (large). Equipment and clothing are very clean, my dad was very particular...

2 days after his 5th year anniversary with the LVAD my husband passed away on month shy of his 61st birthday (which is next week). I have the wall plug, the battery charger with 8 batteries and the harness. I am in NC so please let me know if anyone needs any of these items. Contact me if these...

I just found your website. I have a story to tell. I made a diary from when I decided to have surgery till today. It was daily while in the hospital to a week or so out. Then whenever I have something to add. I hate to brag but the LAVD team at Banner University Hospital in Phoenix calls me their...

My husband has had his Heartmate 3 for almost a year now. He has days where he gets a stinging pain at the drive line site. We have not been able to get an explanation for this. Has anyone else experienced this, know what causes this, or how to eliminate it?

Merry Christmas to all those LVAD'ers out there. I hope that Santa is good to all of you!!

Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?

pump noise Hello I am a new lvad recipient, I had my surgery on September 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?

I asked my husband who has a Heartmate 3 to dig out ten old t shirts he will still wear. THis is all he used to wear so he is comfortable in them. Then I got donations of old t shirts from our children and cut them up to make pockets to go on his old t shirts. I sew two pockets under the arms and...

I am going to get lvad in July at Methodist hospital in Houston. Can any one tell me what all changes I'll be dealing with. And any info shared would be great

My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...

https://www.amazon.com/LVAD-Man-Tabitha-Belhomme/dp/B0BMSNRHM5/ref=sr_1_1?crid=DZ6FAHAKT209&keywords=lvad+man+book&qid=1669051242&s=books&sprefix=lvad+man+book%2Cstripbooks%2C132&sr=1-1 Hello everyone, My name is Tabitha, and I'm a nurse who formerly worked on a cardiac step-down unit. I am reaching...

I’ve always found it difficult to navigate the different forums so I just copied and pasted the post: I went through the same… Mon, 09/05/2022 - 1:35PM I went through the same thing after my VAD implant, wondering what life would be like, whether it was worth it to undergo the surgery, pain and...