Patients and Caregivers Forums

How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?

My husband received a Heartmate III on 3/7 this year. He would like to have an extra mobile power unit and cables to keep in our family room as that is where we do most of our relaxing. Please let me know if you have an extra. We live in the Chicago area.

Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.

If anyone wants to donate LVAD shirts in XL or XXL , please let me know. They are so expensive. Thank you so much!

Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...

Would like to donate some of my husbands equipment. He went to rest with the Lord.

Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...

Hello Everyone! I recently became the proud owner of a new heart! As a result of my new gift, I have several equipment items up for grabs, if anyone is interested. I have the following items, all for a Heartmate 3: Extra batteries / Extra controller / Two battery clips / 8x12 tegaderm bandages / 1...

My dad is a possible Lvad pt at just shy of 80 anyone else have experience with it at this age would love to hear your experience. It seems overwhelming

My new heartmate 3 design is in print and already being shipped out. This is the new Heartmate 3 LVAD Strong design. The design is based upon my own CT scan from 2013.#1 LVAD strong merchandise sold all over the world. Please specify that you want the LVAD Inside logo on the back, or NURSE...

Hi all, My father underwent LVAD implant surgery but unfortunately he passed away immediately after. Since he never left the hospital, all the external LVAD equipment and accessories are unused and left with us. I was hoping to list them here in case someone would be interested in buying as it would...

Hi - Unfortunately, my father passed away in November and was an LVAD patient. I have a couple of LVAD shirts and an LVAD vest that I would like to donate. Is there a place that I could send these to? The hospital did not take donations. Thank you -

I am looking for a grief support group specifically for us caregivers that have lost our LVAD loved one. I’m in the Phoenix area so I’m person groups or online groups would work for me. thanks

Has anyone ever used a gas generator to power their charging doc or main power source? Some doctors don’t recommend using a generator for any of the charging/power needs.

Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx

I've had a lvad since 1/16/2019. My issue is medicare keeps denying my lavd dressing kit costs. As of January 2020 (finally got out of hospital) I require a dressing change everyday because of drainage at the driveline site due to pseudomonas aeruginosa infection. I have been in and out of hospital...

Hi. I am new the this forum. My husband had his LVAD implant in late August 2021. He is still experiencing heavy drainage from the driveline. We are changing his daily dressings every 2-3 days. The site itself looks really good and is not the concern. Our LVAD team has recently suggested taking...

Just got this from a company out of Florida that my MCMS team was working with. Continuum They can supply all of your patches, foley anchors, silver foam etc. It is billed diretly to Medicare which is a god send, since I was pushing $450 per month, now I can save what I didn't have to begin with...

I just received my LVAD on 6-24–19. I am now allowed to shower. I was just wondering what you cover driveline dressing with?

Hello all, My 73 year-old husband Terry recently passed away, of complications related to a rare type of pneumonia. He received his Heartmate 3 VAD on August 5, 2019 and yes, we went through all the highs and some of the lows post implant. I want to tell everyone to embrace each day; we had SO MANY...