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Profile picture for user Keldog@57
Kelly S.
Equipment

Shower Bags

Last activity 3 months 1 week
I have two brand new shower bags love to offer them to anyone in need of them.
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Profile picture for user Leenerd2002
LeAnn C.
Living with an LVAD

Long-term facilities

Last activity 3 months 2 weeks
Hi my brother brother has had an l vad For about 8 years now. Around June he suffered a fall hitting his head and causing him to have a brain bleed, He had to be rushed to Rochester in Minnesota. They removed part of a skull to let his brain swell. He was in the hospital for For 50 days and now he...
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Profile picture for user gldoble57
Gregory D.
Living with an LVAD

Driveline infections

Last activity 3 months 3 weeks
Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

colleen h

Last activity 3 months 3 weeks
I want to thank everyone for looking and responding to my posts. It makes me feel better to know that I am not alone in this. Good news my husband is coming home today from the hospital, he was denied a rehab facility because he walked 160 ft. He is still very weak and I'm not gonna lie but I am...
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Profile picture for user Ginger
Ginger H.
Travel

LVAD and security screenings

Last activity 3 months 4 weeks
I am planning on attending a college football game in a few weeks. Is it safe for me to allow security to use the wand in order to pass through the entrance gate? Is it safe for me to walk through the security detection portals? Certainly appreciate hearing from anyone familiar with this situation.
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Profile picture for user Anonymous
Anonymous
Patient and Caregiver Forums

NEW LVAD

Last activity 3 months 4 weeks
Hi everybody, I got this email this morning and I read there's a new device that is implanted including the batteries. I don't think I want to go through the surgery again,but I would like to find out if the batteries will be replaced with the ones that I have and are lighter than the ones I have...
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Profile picture for user dgibbons
Devon G.
Clothing Options

Stabilizing belt for jumping recommendations

Last activity 4 months 1 week
I am 26, in fair condition, well enough to exercise and want to add jumping to my exercise program but the controller and two batteries aren't held stable well enough with anything I have. Does anyone have suggestions? Thanks
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Profile picture for user rwordner
Randolph O.
Medications

Randy O.

Last activity 4 months 1 week
I have an Evaheart 2. I received my LVAD at Methodist Heart Hospital in San Antonio, TX, on Dec. 15, 2020. I would like to know if anyone else is using Amioderone for A Fib. I got my implant for CHF due to cardiomyopathy. My ejection fraction was <15. I would like to hear from anyone else with an...
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Profile picture for user TinMan2
Randy R.
Inspiration and Encouragement

Little Doug's Heart Walk Team

Last activity 4 months 2 weeks
We are participating in the 2022 Metro Chicago Heart Walk, with FOUR LVAD patients. Our team captain, Little Doug, is the youngest patient living at home with an LVAD in the United States. Diagnosed with dilated cardiomyopathy and acute heart failure, Little Doug received his LVAD on September 8...
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Profile picture for user Patty F
Patricia F.
Driveline Management

LVAD Weekly Change Kits

Last activity 4 months 3 weeks
Hello... I have 9 Centurion Driveline Management System Kits. Part number DT17415. If you can use these please let me know; no charge, of course. I also have a few extra foley anchors. Just cleaning out supplies we no longer need.
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Profile picture for user Reiss_Tatum
Reiss T.
Living with an LVAD

HIP REPLACEMENT SURGERY

Last activity 5 months
I am a 78 year old male LVAD recipient, eight + years out. Generally have been doing quite well but am increasingly bothered by a very painful hip which is inhibiting my activity level and quality of life. I am interested in communicating with any LVADers out there who has had hip or joint...
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Profile picture for user Patty F
Patricia F.
Clothing Options

LVAD Gear to share

Last activity 5 months
I have two LVAD Gear tank tops that we no longer need. One 3X in black and one 4X in black. They were used for the Heartmate III system. Used, but still in reasonable condition. No charge... just clearing items we no longer need. Please let me know if you can use them. Also have the shower bags...
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Profile picture for user LilMsMisses
Brittney M.
Patient and Caregiver Forums

My Mom

Last activity 5 months 1 week
I haven’t written anything on this forum since my mom got her LVAD that back in 2019. The circumstances Nat my mom received her LVAD that in were not ideal. I took her for an appointment, as I have been doing many times since her heart failure diagnosis, and we were told that if she left she would...
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Profile picture for user tully
Ron T.
Equipment

LVAD connectors?

Last activity 5 months 2 weeks
Does anyone have extra driveline connectors? The line that goes from the driveline to the controller? My dad is always out tinkering and this part of the cord likes to fall out of the bottom of his shirt (he tries to tuck, tape, and cover it) last week he almost cut it in half with a car hood? The...
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

Pain from driveline

Last activity 5 months 2 weeks
My husband had Lvad surgery 6/2/22. He has the Heartmate 3. Today finally he got up and walked a little. But he is having excruciating pain at the drive line site when he stands and sits. He says it hurts all the time but not as bad as when he stands and sits. He says it feels like someone is...
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Profile picture for user Anonymous
Anonymous
Living with an LVAD

Traveling to the Grand Canyon.

Last activity 5 months 3 weeks
Actually I am a caregiver. My husband is the VAD recipient. We are on a 2 week trip at the Grand Canyon then on to Denver to visit our son and daughter in law. Having a great time. The altitude has reduced his breathing comfort. We are staying on paved pathways and do not plan to hike! At 78 Ned is...
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Profile picture for user presbytal
Sravasti T.
Equipment

Equipment & Dressing to give away

Last activity 6 months
Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...
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Profile picture for user presbytal
Sravasti T.
Equipment

Equipment & Dressing to give away

Last activity 6 months
Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...
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Profile picture for user kimelliott
Kim E.
Exercise and Physical Activity

Cardiac Rehab

Last activity 6 months 2 weeks
Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...
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Profile picture for user stonks123
P K.
New to LVADs

Destination therapy LVAD not available in UK?

Last activity 6 months 3 weeks
Hi everyone, My father, 67 is in hospital in the UK with heart failure and poor output and heart stability (he's had stents and a pacemaker fitted in the past). He seems the perfect candidate for a LVAD as destination therapy but the heart doctor stated that the UK only did LVADs as bridge to...
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Facebook Groups

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    MyLVAD
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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
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    LVAD Connection
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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